At first, having a child with a disability seemed like an impossible and daunting job. Looking back at the scared mom I was seven years ago, I wish I knew then what I know now. If I could go back in time, this is what I would say…

  • Dealing with the diagnosis is one of the hardest parts of the journey. The rest becomes everyday life, you find your “normal.”
  • Grieving comes in waves. New stages might require new things to grieve. It’s okay, it does not mean you don’t love your child, or that you have not accepted their diagnosis. It is normal to feel this way.
  • Reaching milestones will be an accomplishment of extravagant joy and celebration.
  • Your child will be a child first. Their disability will only be a part of who they are, not what defines them.
  • You will love your child with a fierceness that will surprise you and fuel you every day.
  • Your heart will expand a 1000 times over.
  • Your child will bring you incomparable JOY.
  • You will come to realize how much you needed your child and how much parenting him/her has changed you.
  • Thanks to your child, your priorities will change as you understand what really matters in life.
  • It will not always be easy, but it will be good!
  • You can do it, and you will be better than okay.
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