Editor’s note: This is a guest post by Leah Spring for a summer series highlighting great bloggers who focus on disability.
 

It was Angela’s spring choir concert. I have to tell you, these choir concerts are bitter sweet for me. I waffle from loving all she is doing, then moments I’m in tears.

choir concert

Let me explain….

When I was pregnant with Angela, like all moms, I had hopes and dreams. Because of the very difficult pregnancy, I had several ultrasounds and knew I was having a girl. I didn’t know anything else.

I am not a person who enjoys shopping much, but I had this recurring dream of shoe shopping with a long-haired little girl who looked just like me. (Funny, it was always about shoes; the most difficult piece of clothing to buy for Angela.) My point is, I had these dreams of where we would be at this time of our lives, and these choir concerts are a time when it is  evident to me haven’t arrived and probably never will. There are a lot of things in life Angela will never do that all her typical peers are doing, and they’re getting awarded for doing them….at the choir concerts.

I never talked about the Christmas concert and what happened to make me want to crawl under a chair in embarrassment. I’m sure most of the other 1000 parents in the audience didn’t have a clue what was happening, but I did. So this time, I was prepared to avoid a repeat of the Christmas concert. I bought Angela three new pairs of shoes (two will be returned) in an attempt to find a pair that were not only cute and matched her dress, but that she could also walk in safely. I bought two dresses for her to try, hoping one would be appropriate for her. Because she is so tiny, I have to buy dresses for her in the little girls department. Little girl dresses on my 17 year old daughter. (Stuff in the women’s petites or Juniors are too broad in the shoulders/chest which cause..ummm..exposure.) I hate putting Angela in dresses. It’s not socially safe for her to be in a dress. Things can happen, like when she does “the worm” on the floor…..on her back….in a dress.

When we arrive at school, it hits me.

The beautiful high school girls in their stylish dresses, the fancy shoes, the hair, the make up. It’s not Angela. It’s just not where she is right now. The other girls, they greet one another with squeals of delight. They give Angela a half-wave on their way to greet another friend with a hug and peels of laughter.

But Angela sees her true friend coming. Another student from the special ed program. Their pleasure in seeing one another is genuine, not forced. They are real friends.

Angela is happy.

Why do I feel like I’m going to cry?

I will not cry. I will not cry. I will not cry.

I leave Angela with the rest of the choir members and find my seat in the auditorium with one of the other parents. While we’re waiting for the performances to start, I look through the program and see there will be a lot of awards tonight. It’s the last concert for the graduating seniors and there will be a little send off. My chest tightens at the thought of these awards being given out because I know…I know there won’t be an award for Angela.

We listen to the first couple of choirs. Our school is highly competitive in the arts, music included. These are competitive choirs. They are amazing.

It’s time for Angela’s choir. This group of young women have more courage than any other students in that school. They LOVE to sing. They sing with everything they’ve got and you can pick out the voice of every single girl. Every. Single. One. This is not a competitive choir.

As the choir members move onto stage to take their places along the risers, I hear the people behind me talking. “See that tiny little girl with the white top?”

I brace myself. I swear, if there is one derogatory comment made about this choir…. God please not tonight! My friend nudges me. She heard the comment too.

I listen closer, “See her? She has Down syndrome. She’s always in front and she’s absolutely adorable. She LOVES to sing and has so much fun! Watch her. She’s always trying to spice it up a bit.”

Is that it? Is that what everyone else sees of my girl? Because in my head I think they’re praying this part of the concert would hurry up and end, because it can be a bit painful to the ear. And in my head, this ‘cute’ stuff Angela does was ‘cute’ when she was 6, but it’s not so cute at 17! I guess it’s just me, because at least those around me, who don’t know I’m her mother, are getting a kick out of Angela on stage.

Angela does, indeed, like to spice things up! Angela loves songs that get her moving and shaking…all over…and if they aren’t singing those kinds of songs, well she doesn’t really care. She’ll make them that way. On this night, Angela stood on the top riser, screwing up her face as she belted out HER OWN lyrics at the top of her lungs, all the while dancing away to her own rhythm. SHE was having a blast!

After all the choirs had performed the awards given out. I had to wonder…when? When will it be Angela’s turn to receive an award for what she loves doing most?  Not everyone gets awards. I get that. Angela gets that. But like every other kid she HOPES that this will be her time. As her mother, I pray she gets her time. The kids who are getting awards have done great, even amazing things with their voices to earn those awards. They have dedicated countless hours to rehearsals and voice lessons. Angela spends countless hours practicing too…in our basement…with the door closed so we can’t hear her.

Before I know it, it is time to recognize the graduating Seniors. There is a slide show of “then and now”  baby pictures of those graduating. In my head I envision Angela’s early baby pictures – of her with tubes and wires, laying under a glowing light in the hospital NICU. Next, all 50+ students are called onto the stage, one by one, as it’s announced where they will be going next year, and what their long-term goal is. “Sally Sue Smith. She will be attending Harvard Law School and hopes to practice criminal law.”

There were two kids who stood out to me. One is a young man I’ve seen around for several years. I can’t remember what college he was planning to attend in the fall, but he wants to major in Special Education. Another young lady who wants to become an Audiologist and Speech Pathologist. I cried when I heard each of them. I couldn’t help but be thankful some of these kids had been touched by “our kids.” I wanted to find that young man and hug him; to tell him “Thank you!” I wanted to find his mother, to hug her and say “Thank you!” for raising such a cool young man!

My mind went other directions. In two years Angela will be graduating. She will have her named called and she will walk up on that stage, accepting a red rose from her choir director. Will they have to say “Angela Spring, she plans on singing Karaoke in her basement, and perfecting the Star Spangled Banner. She would like to be a neurosurgeon.” But really, where will Angela be going when she graduates? What will she be doing for a job? While Angela’s future is very bright, on this particular night it stood out to me just how uncertain things are.

Being a mom to Angela isn’t always easy. Some things, like this choir concert, are such “normal” life experiences that have a way of turning on me. It’s these “normal” events that point out to me just how far we are from that. And yet, it isn’t about me, is it? It’s about this smiling, glowing, confident young lady who stands ready to take on the world. Isn’t that exactly what the goal has been all along? 

***

Leah's FamilyLeah Spring is a wife and mother of 10 kids, five of whom have Down syndrome. Angela is her biological daughter, and in the last four years, four of her kids with Down syndrome joined her family through international adoption. Leah is also one of the book contributors to Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives. You can find Leah on twitter, and she blogs at Garden of Eagan.

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